Friday, July 31, 2009

Brians first dose of Perflubron





















Brian was picked because of his diaphragmatic hernia to do a clinical study with Perflubron. Perflubron is a special experimental liquid which carries oxygen. Its purpose is to improve survival by filling the lungs with perfluorocarbon and applying pressure to the airway in hopes of causing lung growth which we hope will increase survival.

We were able to witness this procedure around 12:30. The doctors were injecting the perflubron and Brian liked it so much they had to order more from the pharmacy. Doc said this was a good sign because his body is excepting it. They did an x-ray after the injection and will do another one is 5 days to see lung development.

We found out after surgery that 95% of this diaphragm was missing and his left lung is very small.

Thank you all for all your prayers and comments!! We will keep you updated.
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5 comments:

  1. AnonymousJuly 31, 2009 at 4:15 PM

    Please God, let those lungs grow! Linda xoxo

    ReplyDelete
  2. AnonymousJuly 31, 2009 at 4:58 PM

    "We are the miracle of force and matter making itself over into imagination and will. Incredible. The Life Force experimenting with forms. You for one. Me for another. The Universe has shouted itself alive. We are one of the shouts."
    -- Ray Bradbury
    LET THE VILLAGE KEEP SHOUTING LOUD AND CLEAR!
    We continue to send love and light your way dear ones. Kris and Shar Connolly

    ReplyDelete
  3. AnonymousJuly 31, 2009 at 5:56 PM

    God bless our dear sweet Brian!
    Love, Auntie Kate

    ReplyDelete
  4. ErinJuly 31, 2009 at 10:11 PM

    Brian you are such a fighter. It is so hard to believe that such a small baby can shine so brightly. You are a strong little boy who has a special place in my heart. I felt so blessed to be able to touch you today. Brayden and Carson can't wait to meet you. I think about you and your family often and pray for many more positive reports and good news.
    Alyssa and Corey your love and caring are truly helping Brian get stronger everyday. Remember I am ALWAYS here for all of you! You truly have a strong little boy who defies the odds and is so very special. Love you all

    ReplyDelete
  5. AnonymousJuly 31, 2009 at 10:37 PM

    Amazing what prayers and modern medicine can do!!! You go Brian!!!! Be strong little man!!! Prayers to you all. The Grigg Family

    ReplyDelete

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