Monday, September 14, 2009
A few days ago Alyssa and I were very excited that Brian tolerated vent decreases and wasn't as sensitive to touch. At that time these were big accomplishments because it showed us he was fighting off the infection. In the past few days we have learned that Brian's tolerance and ability to breath are affected by everything else going on and can fluctuate day to day and even hour to hour. We have learned to gage his progress by looking at the bigger picture. Unfortunately Brian has a lot of issues right now that the doctors are doing their best to manage but are not improving. The most urgent issue has become the clot in the main artery in his neck. As I have mentioned in previous updates the clot is responsible for Brian's huge head. The clot is also responsible for the fluid accumulating in his chest. If I understand correctly some of the fluid that has been unable to drain through the clotted veins have found another rout, the fluid settling in Brian's chest. The amount of fluid has been steadily increasing which is again putting Brian in a state that is very susceptible to infection. Alyssa and I talked to the cardiologists today. They gave us three options to correct the chylothorax. Brian is scheduled for an MRI tomorrow which should help them determine which option is best. Depending on the size of the clot the doctors would like to try to balloon the vein, hopefully creating the space to allow the fluid to drain properly. If the clot is to big for the balloon option they would try to place a permanent stint. There is also the possibility that the clot is to big to do anything surgically. We are not sure what the plan would be then. If surgery is scheduled for Brian it will most likely happen Wednesday or Thursday. Your continued prayers are appreciated!
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I am thinking of you all the time. I pray that Brian will make it through all this. He is in God's hands. May god do the best thing for him.
ReplyDeleteSomeone twittered this last week:
ReplyDelete"The road ahead is filled with opportunities to trust God and to experience His transforming presence. There is no reason to fear."
It continues to be so very true.
Sweet baby Brian, you will continue to meet each challenge with strength, overcoming every obstacle by the healing grace of God. He Who has begun a good work in you shall perform it until the day of Jesus. Father God may you continue to lend gracious wisdom to the medical staff who care for Brian, and encouragement to his parents. Angels are watching over you little one.
I think of you guys all the time. I will continue sending prayers your way. You have all been through so much. I am here for you if you need anything at all
ReplyDeleteChrissy
You know you always have our prayers and support! Hang in there you two--you are amazing and you make me prouder everyday!
ReplyDelete"Sometimes life is like a rodeo, you put up with alot of Bull and all you can do is hold on for the ride!"
ReplyDeletePlease keep holding on to your faith, your friends and your family...together those things will get you through everything and then we can all rejoice at the end of the ride!!
Jennifer-Durand
You guys are so strong - praise God for the strength He has given you through all of this. As we all pray for you, may God continue to hold you up and use you as examples of faith. I tell people about you almost every day - and today I have to lead a devotion at an old folks home. I'll be reading from an old church founder about strength - I picked it because it reminded me of you guys. After today, more people will be lifting prayers up for you and Brian.
ReplyDeleteThere are no words to comfort you, just know we continue to pray and think about you.. You are all so amazing...Hugs and Love, Dave and Nancy
ReplyDeleteBrian is always in my prayers as are you & Alyssa. I pray the Holy Spirit grants you continued strength and that God's precious hand surrounds Brian every moment. Karen Tapert
ReplyDeleteHang in there mom and dad. You are both amazing people and parents - both of your sons are blessed to have you. We love ya and will continue to pray for miracles.
ReplyDeleteWe are continuing to pray for all of you. Be strong little guy!
ReplyDeleteUncle Paul and Aunt Denise